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Health Technology Assessment
Health Technology Assessment Special Interest Group In October 2024, Lymphoma Coalition (LC) hosted an afternoon workshop for Members of the Health Technology Assessment Special Interest Group (HTA SIG) in Rome, Italy. The 2024 workshop was attended by HTA SIG Members from 13 countries, namely: Australia, Belgium, Canada, China, Denmark, France, Hong Kong, Ireland, Israel, Japan,…
What is CML SUN?
What is CML SUN? CML SUN is a global patient and physician survey by Novartis that explored the unmet needs of people living with CML. A total of 361 patients and 198 physicians (hematologists and/or oncologists) in 11 countries (Australia, Brazil, Canada, France, Germany, Italy, Japan, South Korea, Spain, the UK, and the US) participated…
“Patients need to be involved and feel like they are involved”
“Patients need to be involved and feel like they are involved” Toni Montserra, Spain Diagnosed with CML in 2015 Toni Montserrat was 49 years old when he experienced an unusual amount of fatigue during a family vacation in 2015. When he returned home, the results of a blood test would begin his CML journey. Now…
MPN Horizons 2023 Conference videos & presentations now available
We are happy to announce that all videos and presentations of the MPN Horizons 2023 Conference are now available! Go to conference page
ICBCC 2023 Patient Impact Statement
In 2021, Lymphoma Coalition joined the International COVID-19 Blood Cancer Coalition (ICBCC). The ICBCC comprises representatives from the global patient advocacy and clinical community to address the specific impact of COVID-19 on immunocompromised blood cancer patients (both acute and chronic), like those living with Chronic Lymphocytic Leukaemia (CLL) and other Non Hodgkin lymphomas (NHLs). In…
Lymphoma Coalition at EBMT 2023
Lymphoma Coalition is delighted to announce its participation in the 49th Annual European Society for Blood and Marrow Transplantation (EBMT) meeting, taking place this weekend in Paris France. Presenting the poster, “P877: A Cross-Sectional Study Examining Potential Demographic Barriers to Receiving Information on Clinical Trials in Relapsed/Refractory Patients Who Have Received Stem Cell Transplants (SCT).…
Ukraine Conflict Response Update
Shortly after the armed conflict started on 24 February 2022, LC reached out to both its member organisations in Ukraine and Russia to see how this was impacting their activities and if LC could help. While we all have our political beliefs surrounding this conflict, LC’s first thought was how is this impacting patients? Our…
Lymphoma Coalition at #ASH22
Lymphoma Coalition is pleased to attend the American Society of Hematology (ASH) symposium in New Orleans this weekend, presenting Poster Abstract #3537: “Patient Reported Experience with Fatigue, a Cross-Sectional Study Examining Indolent and Aggressive Lymphomas.” Poster ASH Fatigue 3537 Download The presentation will take place Sunday, Dec 11th: from 6:00 PM-8:00. Session 902. Health Services…
Dr. Ruben Mesa offers guidance to MPN Patients about the Coronavirus (Covid-19)
Dr. Ruben Mesa, Director, Mays Cancer Center, UT Health San Antonio, MD Anderson, offers guidance for patients with myeloproliferative neoplasms (MPNs) in dealing with the Coronavirus (Covid-19).
An MPN Update with Drs Ruben Mesa and Robyn Scherber
Dr. Ruben Mesa and Dr. Robyn Scherber hematologists from the Mays Cancer Center, home to UT Health San Antonio MD Anderson discuss the latest updates regarding new treatments for myeloproliferative neoplasms (MPNS) including essential thrombocythemia (ET), polycythemia vera (PV) and myelofibrosis (MF). They also discuss the latest updates from the 2019 American Society of Hematology…
Best of MPN News at ASH 2019
The MPN Advocates Network’s Giora Sharf interviews Dr. Ruben Mesa from the UT Health San Antonio MD Anderson Cancer Center San Antonio, Texas about the biggest MPN updates we learned at ASH 2019.
“Stories, historias, iсторії, iστορίες”
Mon, Jan 1
Free Workshop
This immersive event celebrates the universal human experience through the lenses of history and ancestry, featuring a diverse array of photographers whose works capture the essence of different cultures and historical moments.
RSVP
