New Regional Leader for the Western Europe region has been elected!
We are absolutely thrilled to announce that Nigel Deekes, a dedicated member of the CML UK Facebook Group, has been elected as the temporary Regional Leader for the Western Europe region in our esteemed Patient Organization! Nigel brings to the role a wealth of experience and a proven track record of unwavering dedication to the…
“You have to educate yourself so that you can be your own advocate”
“You have to educate yourself so that you can be your own advocate” Joannie Clements, U.S.A. Diagnosed with CML in 2001 Joannie Clements was diagnosed with chronic myeloid leukemia in 2001, not long after a broken neck forced her husband Jerry into early retirement. Their relationship would be put to the test during a harrowing…
What is CML SUN?
What is CML SUN? CML SUN is a global patient and physician survey by Novartis that explored the unmet needs of people living with CML. A total of 361 patients and 198 physicians (hematologists and/or oncologists) in 11 countries (Australia, Brazil, Canada, France, Germany, Italy, Japan, South Korea, Spain, the UK, and the US) participated…
“Patients need to be involved and feel like they are involved”
“Patients need to be involved and feel like they are involved” Toni Montserra, Spain Diagnosed with CML in 2015 Toni Montserrat was 49 years old when he experienced an unusual amount of fatigue during a family vacation in 2015. When he returned home, the results of a blood test would begin his CML journey. Now…
Registration for attending CLL Horizons 2024 in-person is now closed. Final call for virtual registration!
The CLL Advocates Network (CLLAN) Steering Committee is thrilled to announce the return of our highly anticipated in-person event after the pandemic hiatus. Our 5th conference promises a blend of in-person and virtual experiences scheduled for 27th – 29th September in Barcelona, Spain. Final call for virtual registration! – CLICK HERE TO REGISTER Draft Agenda: You can view draft…
Spotlight on ALAN members
In 2024, with ALAN support, some of our members have been able to start and/or complete projects which benefit acute leukemia patients and their families. We are very grateful that our support could contribute to make these projects happen. Aim: provide accurate and comprehensive information to support shared decision-making among those impacted by acute leukemia,…
1 SEPTEMBER IS WORLD CLL DAY – CAMPAIGN TOOLKIT NOW AVAILABLE FOR YOU TO USE!
Dear friends of the CLL Advocates Network Every 1 September, the global CLL community unites to raise awareness about chronic lymphocytic leukemia (CLL) and give those affected by a diagnosis of CLL a much-needed voice. On World CLL Day we come together to improve understanding of the vulnerability of CLL patients and the challenges involved…
EHA 2024 Recap: Optimizing the Relapsed/Refractory CLL Treatment Pathway Webinar
On 9 July at 10:30 am EDT/4:30 pm CET, experts will recap the latest data from EHA 2024, speculate on how it may fit into treatment guidelines, and consider how best to incorporate recent advances into the treatment algorithm. They will discuss the key factors to consider when selecting a therapy for a patient and…
EHA 2024
From 12th to 16th June, ALAN attended the European Hematology Association (EHA) 2024 congress, held in Madrid, Spain. Below is a summary of the activities in which ALAN took part, in addition to meeting with our members, sponsors and with the medical community. We are also reporting on the key sessions and latest advances. Check here…
Highlights from EHA – Infographic gallery
Download your copy and discover the core insights from EHA Congress, condensed into a dynamic infographic. Acute promyelocytic LEUKEMIA (APL) FIRST RESULTS OF THE APOLLO TRIAL: A RANDOMIZED PHASE III STUDY TO COMPARE ATO COMBINED WITH ATRA VERSUS STANDARD AIDA REGIMEN FOR PATIENTS WITH NEWLY DIAGNOSED, HIGH-RISK APL APL APOLLO Trial Acute lymphoblastic leukemia (ALL)…
Proudly welcoming another new member: The CLLAN now counts 54 members from 44 countries!
We are proud to welcome a new member to our network! Please join us in welcoming Henzo Kenya, our first member from Kenya! HENZO KENYA, is a Community Based Organisation Registered in Kenya. It brings together about 1,500 cancer patients for awareness, mutual support and advocacy. Most of the patients (about 80%, are on treatment…
WEBINAR: “Latest News from EHA 2024”
Dear members & friends, We are excited to announce a special webinar focusing on the latest advancements in Myeloproliferative Neoplasms (MPN) research, as presented at the EHA Congress 2024. Join us for an in-depth discussion led by esteemed experts in the field, Susanne Isfort from the University of Hannover and Heike Pahl from the University…
Registration is now open – Join us for the 5th “CLL Horizons: Learn. Share. Grow” Hybrid Conference
DATE: 27th – 29th September 2024LOCATION: Barcelona, Spain The CLL Advocates Network (CLLAN) Steering Committee is pleased to announce the 5th International CLL Horizons Conference, a hybrid event scheduled for 27th – 29th September in the stunning city of Barcelona, Spain. Registration is now open – CLICK HERE TO REGISTER Event Details: Date: 27th – 29th September 2024 Location:…
Webinar: Unravelling EHA’s key topics: Patient and HCP perspectives
Dive into key topics presented at EHA alongside. In this dynamic 60-minute session, we explored the significance of these topics for patients, with ample opportunities for live Q&A. Presentation: Unravelling EHA’s key topics_Webinar Slides Recording: Thank you to both speakers Dr Pramila Krishnamurthy and Anne-Pierre Pickaert. We hope you find this webinar useful !
Frontiers in MPNs
Dear members and friends, We would like to inform you that GSK is inviting the MPN Horizons attendees to a meeting on the morning of Friday, September 6. The meeting is called Frontiers in MPNs. After lunch we will launch MPN Horizons 2024. Participation in Frontiers in MPNs is optional. If you are interested in…
Diversity, Equity, and Inclusion (DEI) Award 2024
While attending the European Hematology Association (EHA) annual congress, Natacha Bolaños, Head of Membership & Alliances, received the Diversity, Equity, and Inclusion (DEI) Award on behalf of Lymphoma Coalition. The award was presented at the opening ceremony of the annual congress in Madrid, Spain. This accolade is the first of its kind and underscores the…
“Stories, historias, iсторії, iστορίες”
Mon, Jan 1
Free Workshop
This immersive event celebrates the universal human experience through the lenses of history and ancestry, featuring a diverse array of photographers whose works capture the essence of different cultures and historical moments.
RSVP
