Save the Date for the 23rd International CML Horizons Conference 2025
Dear members & friends of the CML Advocates Network, Save the Date for the 23rd International CML Horizons Conference 2025! Join us in Bucharest, Romania, from May 23-25, 2025, for the 23rd CML Horizons Conference! This year’s event offers two and a half days packed with valuable perspectives, hands-on advocacy strategies, and the latest advancements…
CML Advocates Network Meets with Novartis CEO to Review Progress and Strengthen Collaboration
On September 10th 2024, the CML Advocates Network’s Community Advisory Board (CAB) had the unique opportunity to meet with Novartis CEO Vas Narasimhan to discuss the progress made on commitments to the CML community since their previous in-person meeting in 2018. Representing the global CML patient community, advocates Šarūnas Narbutas, Pat Garcia-Gonzalez, Lisa Machado, and…
‘This thing is not going to be the end of my life’
‘This thing is not going to be the end of my life’ Onward Mudindo, Zimbabwe Diagnosed with CML in 2014 Onward Mudindo was just 34 years old when he was diagnosed with CML. Over the next five years, the disease — and the side effects from the drugs used to treat it — forced him…
APPIS is back! Register now for APPIS 2024!
The Alliance and Partnerships for Patient Innovation and Solutions (APPIS) is an organization that aims to bring together individuals and groups to create innovative solutions for patients. With its 4th year approaching, APPIS continues to make a positive impact. Rod Padua chair of CML AN and also serves as a strategic advisor for APPIS. With…
Surviving CML makes you ‘grateful for the little things’
Surviving CML makes you ‘grateful for the little things’ Eunice Orekha, Nigeria Diagnosed with CML in 2006 Eunice Orekha was in the middle of moving her family to a new city in Nigeria when something seemed off. Just 30 years old at the time, the government worker attributed the fatigue and weight loss she was…
Highlights from ASH 2024 – Updates in AML
UPDATES IN AML The following summaries highlight key findings from research posters presented at the 66th ASH Annual Meeting, showcasing new developments in oral maintenance therapies for acute myeloid leukemia (AML). In AML, relapses are common after remission. These treatments aim to help patients stay in remission longer while offering convenient, at-home options. Oral Combination…
Highlights from ASH 2024 – Updates in ALL
Updates in ALL These research updates were presented at the 66th American Society of Hematology (ASH) Congress. The focus was on new treatments and approaches for acute lymphoblastic leukemia (ALL). ALL can sometimes return after treatment (relapse) or the leukemia can fail to respond to initial treatments (refractory disease), making it harder to achieve long-term…
In Conversation with… The Steering Committee Members of the MPN Advocates Network
The MPN Advocates Network (MPN AN) is delighted to share a special vlogcast featuring its Steering Committee members. Hosted by Nona from MPN Voice, this engaging conversation sheds light on the people behind the network, their roles, and their vision for the future of MPN advocacy. We are incredibly grateful to Nona and MPN Voice…
ASH 2024
From 06th to 10th December 2024, Jan, Charles, Catherine and Cheryl attended the 66th ASH Annual Meeting and Exposition in San Diego (USA). ASH‘s annual meeting typically attracts over 30,000 participants, including clinicians, researchers, and healthcare professionals focused on hematology across the world, including a rather homeopathic but energetic number of patient advocates. Before leaving,…
ALAN at ASH Congress: Empowering advocates for acute leukemia awareness!
We’re thrilled to be attending the American Society of Hematology (ASH) Congress in San Diego (USA) from December 7th to 10th. Get ready for a series of engaging activities that advance awareness and knowledge about acute leukemia, as we delve into the latest research from ASH. Following ASH, don’t miss the opportunity to join our…
Save the Date for the 23rd International CML Horizons Conference 2025
Dear members & friends of the CML Advocates Network, Save the Date for the 23rd International CML Horizons Conference 2025! Join us in Bucharest, Romania, from May 23-25, 2025, for the 23rd CML Horizons Conference! This year’s event offers two and a half days packed with valuable perspectives, hands-on advocacy strategies, and the latest advancements…
Leukemia Think Tank Feedback: State of Leukemia in South Africa
A Leukemia Think Tank, hosted by the South African cancer advocacy group Campaigning for Cancer (C4C), took place over two days, from 26 to 27 September, at the Premier Hotel in Midrand, Johannesburg. Stakeholders from various sectors attended the multi-disciplinary event to discuss how health professionals and patient groups can collaborate to improve responses to…
CML Advocates Network Meets with Novartis CEO to Review Progress and Strengthen Collaboration
On September 10th 2024, the CML Advocates Network’s Community Advisory Board (CAB) had the unique opportunity to meet with Novartis CEO Vas Narasimhan to discuss the progress made on commitments to the CML community since their previous in-person meeting in 2018. Representing the global CML patient community, advocates Šarūnas Narbutas, Pat Garcia-Gonzalez, Lisa Machado, and…
Day 3: Sunday, 29 September 2024 – Reflections and takeaways from CLL Horizons 2024
As we wrap up CLL Horizons 2024, we reflect on an inspiring and collaborative final day filled with meaningful discussions, insights, and learnings. Sunday, 29th September marked the culmination of three powerful days, with a focus on critical topics in CLL care and advocacy, aiming to empower patients, caregivers, and professionals alike. To relive the highlights…
Day 2: Saturday, 28 September 2024 – Best Practices in Advocacy and Medical Insights
The second day of CLL Horizons 2024 began with a sense of excitement as attendees looked forward to diving into advocacy best practices and gaining medical insights from experts around the world. The day was designed to empower patient advocates and offer participants the tools and knowledge to advance CLL treatment and support efforts globally. To relive the highlights of this…
Day 1: Friday, 27 September 2024 – A Strong Start to CLL Horizons 2024
The first day of CLL Horizons 2024 began at noon with a warm Opening Lunch on the Evolution Terrace, where participants were welcomed by the event team. Over lunch, attendees were introduced to the structure of the conference and received guidance on navigating the sessions ahead. Don’t miss the highlights! View our 2-minute video recap below. Workshops: Building…
Financial Times: Improving AML Patient Care
https://acutemyeloidleukaemia.live.ft.com/ Discussion topics include: What is the experience and unmet needs of AML patients, families and carers, and the challenges they are facing? What is their view of how their diagnosis, treatment, care and support could be improved? What are the cost drivers of AML treatment and care, and how might new drugs, diagnostics, new…
“Stories, historias, iсторії, iστορίες”
Mon, Jan 1
Free Workshop
This immersive event celebrates the universal human experience through the lenses of history and ancestry, featuring a diverse array of photographers whose works capture the essence of different cultures and historical moments.
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